How long did it take you to figure out what to change in your life to help make you feel better?
I am still on the journey of trying to figure out what to eat, what not to eat. How does my body react to things. I’m lost and I can’t keep track. Every time I think I know, I don’t really have it. That alone is exhausting.
Being in so much discomfort and pain. You don’t want to take away everything you love. I want to be able to have those things that just make me happy, but I don’t know if those things are keeping me from being stuck in this never ending cycle.
Lately I’ve been so stressed which is not good. Random things keep happening as they always do but I’m never ready or looking forward to. For example: I’m sitting up in bed legs crisscrossed “indian style” I unfold them and notice my right foot is going numb, like it’s fallen asleep it’s tingling. Within seconds of me noticing that the same feeling moves up my entire leg and thigh. I’m freaking out because it feels weird, uncomfortable and I don’t know what’s about to happen next. What if I lose all feeing or can’t walk. I took off whatever clothing I had on just to feel free and I laid back and tried to relax. The feeling goes away at some point but I’ve never had that feeling go up my leg like that and especially with me just sitting on the bed.
I’m like I have to be mindful of so much that I do and that is one reason why I choose not to go to every family event of go everywhere in general because I’m just concerned of what or how my body may react to be being out.
Right now I have a toe that had been bothering me since yesterday and it feel the bone of the toe or joint hurts.
I’m so exhausted trying to live a life that I feel is trying to kill me. I can’t seem to get much of anything that is important to me done. My hands keep aching, I have to take breaks for that along with the fact I’m not sleeping well so I have to sleep when my body allows me to. Well I should say mind and body allows me to. Mostly by He time I fall asleep and wake up the day is almost over and I’m trying to get in as much as I can before it’s time for me to try and fall asleep again like a “normal” person.
Oh!!! I almost forgot another reason I haven’t been sleeping is because my skin as been itching so bad. I’m feeling things on me, feeing little pricks and stings. I feel like I’m losing my mind. Then seem like every time I get to sleeping really good, I have to get up to pee. 🤦♀️ trying to find balance of cold and hot is another struggle.
Of course I could go on and on…. I just don’t know if I will ever have this all figured out.
All I know is keeping negativity away and saying NO when I can’t and don’t want to do something right go somewhere. Making myself laugh more and putting time and energy into myself.
I hope that you all woke up in a good spirit today.
I woke up this morning with a new state of mind about myself. Knowing what you have to do for yourself is only one small part of the battle, maybe even the easiest part. Actually putting it into action is tough for some.
“Knowing what you have to do for yourself is only half the battle.”
This morning I got up and I moved. Not just that slow pace to the bathroom move. I really got up and moved. I had to shake it off so to speak. I did squats, high knees and some arm exercises. I don’t have any weights so I used a bottle of Gain detergent, that is 100 oz. roughly about 7lbs. Even though I’ve done a little bit here and there, I’ve done exercises that have left me in serious pain. Today I woke up different and today these exercises meant more to me and I felt I was doing it right this morning. I am proud of myself.
I am sorry for anyone who woke up this morning in any pain or having negative thoughts or you are having trouble. If anyone is going to a flare, I know how it is. I just want to share my moment of feeling good with you all in hopes that it inspires someone else.
I will enjoy this day and not focus on tomorrow until it is here. I can’t promise myself because it would only turn into a lie (maybe) I never know how or if I will wake the next day, so I will set a small goal.
In hopes that I reach this goal every day. That goal is to have a positive thought(s) when I wake up.
It won’t be easy but I will continue to try.
“Wake up with a positive thought every morning.”
(how I felt last year in March 2018)
I’m ok but I’m not good. Yesterday, I had muscle spasms/cramps in my body. This was the first time I felt this in my chest (like that) It hurt as I walked it tighten. Also felt it in my back, down my legs as I walked. It took my breath away and at that moment I felt so alone. No one knows what I’m feeling, even if they do know, no one understands, there’s nothing anyone can do. No one really knows what to say to me. It was so bad yesterday that my husband walked with me to the mailbox. As I took my time, holding onto his hand. I thought to myself, omg, I cant end up like this. I’m exhausted, it’s so much random shit. Like last night my eyes just began to burn and watered up so bad it was like I was crying. No one will never truly understand me. I have been locked up in a prison of my mind forever, now my body is torturing me. My life has been hell on earth. Some days are difficult.
I am still here and still fighting. Dealing with mostly the stress of life than dealing with pain. Even though I know any stress can cause pain in my body. All of the weather changes of being warm one day then back cold, has bothered me. Also my sleep patterns have been off. Not sleeping well is enough on it’s on but feeling sharp pain off and on in a leg or foot or anywhere, randomly, makes it difficult to fall asleep. I’m feeling sharp pain in my left foot right now as I type this. By the way it’s 2:35 am and I have no idea when I will fall asleep.
I stepped out of my comfort zone this week. A store I went into were hiring for stocking and I got an application. It’s a small dollar tree store and it really needed help. My mom and I asked if you can just get hired just to stock and they said yes. I’m hoping that this will be the first time, well I take that back the second time I can get hired not to be a cashier. I have most of my experience in retail, also was a assistant manager so I qualify for the job. The only thing is, I haven’t worked in years. I know I don’t want to handle the stress of being a cashier but being on the floor and organizing things is the part I always enjoyed.
Plus dealing with the symptoms of fibromyalgia a lot has changed with myself. Also my anxiety had gotten worse, so it’s a big step for me to have taken the application back yesterday. I drove myself, which is a big deal now. I have to wait until Monday and I will see what happens.
At least I’m making an attempt.
I just want to do something that won’t be too much stress on me and can give me a income to contribute, so I won’t feel like a waste of space or at least put a little money in my pocket.
Today I read a message that was sent to me and it like many others I’ve received. It’s full of hope about being “cured” about making life better, having a life without pain. The funny thing is I’m not in pain right now as I’m writing this but like any other day that could change at any moment. I wanted to share the message with you all and share my response. I hope I do not offend the person who sent me the message but I dislike people who send me messages of wanting to talk to me about something that will fix me, as if I’m broken. Well they stated that it’s something that will give me my life back. The one problem with that is unlike others, this is the only life I’ve known. It hasn’t been any better or any worst. It just is what it is. Everyone with or without a chronic illness will have good and bad days, they will also want to vent or complain a bit. My life is what it is and even with chronic pain I don’t know what I would be doing differently. My pain isn’t what has stopped me, many other factors in my life have kept me from succeeding. I was on a downward spiral on an never ending roller-coaster and fibromyalgia forced me to stop and examine my life and realize I had many habits that needed to stop. My pain is a wake up call, a reminder of I’m still not the person I should be.
If mentally I’m the same person and I spend money to buy any and everything that could make me feel better, for how long will it work? Won’t I become depended on it? What happens if I can’t get it anymore?
I may not always be smiling and hopeful for my down days don’t last as long as they used too. Mentally I’m much stronger now than I’ve ever been. My body is forcing me to make changes but I want to be able to find a way that doesn’t have me buying some special kind of product regardless if it’s “healthy” or “natural” I have a long way to go. Financially I want to start with the basics such as the food I eat, getting enough sleep and being as active as I can. Until I’m able to get those things under control I’m not wasting money. I need free solutions for my life. I know many will argue that it’s worth it but I don’t agree. I want to just be able to buy fresh vegetables or grow my own and eat without worrying that it’s going to make me sick. I want to be able to have a drug-free life. I made it to age 33 I think I can make it many more years. (Just how I feel about my life)
Message Sent: “HI Melissa, How are you going? I kind of feel like that is a silly question as I just read your current blog (from the 10th). I wanted to connect as I have a large circle of people around me with Fibromyalgia and we have found something that has given them their lives back. Sounds crazy and impossible, I know! They all think the same things 😂 If you would like to connect, and learn more, please feel free to get in contact with me. I would love to skype/face time and find out more about you. Take care.”
My response: Hi, financially I can not buy anything to try in hopes it will magically make me feel better. The difference from me and others is, other people had a life they loved before fibromyalgia and have a point that they wish to get back to. Since I was young I’ve lived with anxiety and depression and the fibromyalgia came later, which I feel I maybe always had. I don’t have a life to get back. I just have the life that I live. I’m still here and still going, I don’t look at my pain as a life stopper, I feel it’s been a life changer for the better. It sucks and it is very painful at times but I don’t like being told that there is some fix all product. If there is why be so secret about it. Give me something to post and let everyone know about this wonderful thing that will give them there lives back. Thank you take care.
Monday I started a new exercise routine that I felt would be easy enough for me to do and I could keep it up. Tuesday came and I was very sore, to the point I was walking like tin-man. I decided I would rest one day then get back to the next and keep this pattern going.
All day Tuesday I was sore and felt like this was going to be a total failure again. While in bed sleep thinking about Wednesday, I was creating excuses in my head. All night through early morning, as I get in and out of bed to use the bathroom, I’m so sore and I just know I won’t be able to do any kind of workout.
I’m thinking that just getting up out of bed is good enough. Walking around to get stuff done is good enough. I want to lie in bed and let my body not be sore anymore. Truth is though my body might never not be sore, I would be waiting forever.
That point came when I was ready to get up and I made me some ice coffee, took some vitamins and I seemed to be walking a little easier, I was still feeling sore but I felt I could definitely move around.
I put my sneakers on and played some music and got started. I did my exercise and I’m proud of myself for not giving in to my excuses.
I don’t know if I’m the only one who has put on extra pounds since the symptoms of fibromyalgia kicked in. Over the past years I’ve tried, done my best to keep a workout routine and I always end up finding reasons to stop, other than the pain. I get really bored and of course not having someone to workout with, but not having someone with the same energy, attitude, and of course someone that I really like.
To other people I may not look any different and I’ve never been a skinny or slim person but I see and feel the difference. It was not just the number on the scale that bothered me. Recently my knees have been bothering me to the point I sometimes feel they will give out on me. It started with my left, and sometimes it’s my right knee. The ache or pain catches me off guard and I have to catch myself as if my leg is giving out. My breathing has gotten heavier and I give out of breath easier. If that wasn’t enough. One morning I wake up and I see my stomach, I notice streach marks on my stomach! I have not had any babies so I should not have streach marks on my stomach. I knew I had gained weight but not to that point. At this point I’m telling myself the same thing I’ve always told myself, you have to do something about this. Having depression and anxiety both make it difficult to find motivation to do anything. Clothes have gotten tighter, everything is uncomfortable and I refuse to go up a size. I will get back to where I was and hopefully go down a size.
Okay I’m rambling on, I’ll get to the point of this post. I came across this video on YouTube and the guy doing the video was a little comical which caught my attention, but also the fact it seemed easy enough. I told myself I would try it.
When I woke this morning feeling like doing nothing. Throat seemed swollen and sore. I’m trying not to gag. I had my cup of coffee then endured brushing my teeth without gagging up a lung. Afterwards, I don’t know what came over me. I made the choice in my head that I was going to try this workout. So I did.
Ok everyone I had the slowest moment in history, dumbest mistake. I get started with the workout. I open the clock app on my phone and set timer for 30 seconds but I do not look at the other columns and hit the start button and I begin to walk as fast as I can back and forth. I’m thinking to myself this is the longest 30 seconds ever, it shouldn’t be taking this long. I keep going and going. Finally the alarm sounds and I look down and I see why it took so long. It was set to 15 minutes and 30 seconds. I couldn’t believe I had did this to myself. My mind could not register that I needed to stop because it was wrong. I had a second or two when I knew something wasn’t right but my mind could not figure out why. That makes me sad and I feel like I’m losing the function to comprehend but on the positive side of things, I got a nice workout. I finished up the right way. I was to do the quick workout four times but since I had added that 15 minutes to it, I figured I would say I had done enough for now.
https://youtu.be/Zsr3LDkbM0M (here’s the link to the video)