365 Days of Fibromyalgia

Posts tagged ‘Awareness’

I’m Tired of Explaining

I just want others to remember what I’m going through. Other people don’t get questioned, if others say “I’m tired, hurting somewhere, I’m sick.” People think to themselves, “Oh must be the (fill in the blank.)

But let someone ask me what’s wrong, how do I feel? I answer, “I’m tired, this or that is hurting, I feel sick.” They respond, “Why? What did you do?”

All I want is understanding, just remember I have fibromyalgia, remember it causes me to be in pain and a long list of other bullshit that can’t be explained.

Please come up with better responses because I don’t know why, nor do I know what I did to deserve this pain. All I know is what I feel is as real as you and me. Well most of you, a lot of you all are fake. Trust me I don’t want to feel this way. My entire life all I’ve known is pain in every form.

Family think they know me, and I know secretly they think I’m lazy, spoiled, anti-social, and whatever else.

Educate yourselves and search the word/term Fibromyalgia.
Do not tell me that you know someone who has it, because the illness is different from person to person.

You need to get to know me.
And I won’t die anytime soon, I will deal with this crap for the rest of my life. I have no idea if it’s going to get worst as I get older. The changes are happening every year.

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#May12BlogBomb

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Today is Fibromyalgia Awareness Day, and I wonder how many people other than the ones you have it knows about this day.

It’s not a day that people around me know or remember if I’ve told them. I have no T-shirt to walk around in, have no one wearing one for me. Even though my life is in Gods hands, if a doctor was to put a time on my life, everyone would care then. The fact that fibromyalgia is nothing you can just die from, so they say. It’s just a normal thing now for me to be in pain. What am I doing today? I’m just trying to rest.

The pain becomes like second nature, it’s apart of your life, a living, breathing thing that is draining all of your joy and happiness. You have to find a balance and figure out how you can be happy with pain. That sounds crazy but it’s true. You can’t allow it to get you down. imageimage

Every day is awareness day for me but it’s sure great to have this day today to showcase and really let people show there support. Thanks to all who wear purple for fibromyalgia today and every day for the ones you care and love.

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