We are WildFlowers

Posts tagged ‘Awareness’

Invisible illness

Hello WildFlowers,

When explaining an invisible illness it can be difficult to put it in terms that can clearly be understood. Many may say they understand but they truly have no idea.

Unless you live it, you don’t get it.

Even people who live it don’t fully understand each other because each illness affects everyone differently.

Treatments that help some may not help others.

When you live with someone who is suffering you see a up close and personal view of the struggles and you neither educate yourself and be supportive or get frustrated and make the person feel even worse. It’s a difficult life to live especially when you’re still young and people look at you and don’t see sick, they see you as being healthy.

If you’re not dying or on a boat load of medication/prescription drugs they don’t believe anything’s wrong with you. When you are trying to conserve your energy and you’ve changed your life to work for you, they think you’re lazy. Think you’ve given up or not trying hard enough to get better.

People tend to not except my truth, they think it’s bullshit and I’m full of excuses.

People will never see me on the outside as I feel on the inside. They will never believe me until it’s too late.

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Personality

At some point in my life I started looking into my zodiac sign and I am a Libra, which in most ways describe me but in others it doesn’t.

Now I know you must be wondering what am I getting at. Well for most people they have a person they used to be, things they used to do and so forth, someone they would maybe wish they could be again or not. My point in saying this is, I don’t have that. The person I am is all I’ve known all my life. I’ve lived with anxiety since I was a child, so yeah I was never a “social butterfly” I’ve always been on edge, scared and a over thinker. Like I said a lot of things show that it’s natural because of my zodiac sign I’m naturally a over thinker and prone to get depressed at times. Then a few years ago I looked into the Briggs-Myers personality test http://www.humanmetrics.com/cgi-win/jtypes2.asp (here’s a free version an example) and after doing it my results was the INFJ personality. I am an introvert, and again which this information I found out that this type of personality is somewhat rare and very “messed up” I laugh at thinking about it because that’s the best way I can explain it at the moment.

Like others with chronic illnesses I too am good at putting on a smile and being around others, but it makes me exhausted trying to not think about all that I’m feeling in that moment. I could be having fun laughing and such but still thinking about how uncomfortable I am, how much I want to take my clothes off and be back in bed, etc…

This personality also shows signs of anxiety…

Most people say that there illnesses have changed them, which may be true for the most part but for myself, I feel this has always been who I was. The anxiety, depression, fibromyalgia, caused me to become more of this person and of course I do know it has stopped me from becoming or being the person I thought or think I should be. Maybe I am who I’m supposed to be though. It sucks feeling this way but it’s all I know. I’ve always been different from the people around me and always seen things differently. Maybe I was meant to be this way so others around me can be the way they are. Maybe there is no changing me, this is me and I just want to be accepted the way I am and not looked at and made to feel like the person I am is not good enough.

I don’t want to be silent anymore or ashamed of myself. I want to speak out more and let the people around me know how I feel and that looks can be deceiving. Love me or hate me, this is me.

You take the chronic pain away and all the other symptoms and I’m left with the younger self I once knew but still with anxiety. If you take the anxiety away, then I won’t know who you would have because I don’t know that person. I know this could be debatable but I was born a baby with concerns of the world as I looked around. Created from two parents that were depressed. One who suffered from major depression and another who drunk to deal with it. I was born and surrounded by other people sadness, madness and I felt it all, all the emotions. I wasn’t the type of child to sit and play with my toys and block out the world, I watched and it all affected me in some way. I won’t go into detail of things that happened but as a child I should not have been around or known of the things that occurred. My trauma started early and never seemed to come to an end.

Failure at Life 

It’s a little after five in the morning and I been up since yesterday, I can’t sleep. I’m crying still thinking of things said to me yesterday. 

I’m going to move on from it but it will always remain with me as a weight on my back. 

No one understands me and they all think they know me, it’s laughable. 

Here’s some things said to me yesterday by my mother, FYI she has major depression sees a therapist and psychologist and takes prescription drugs for it among other things. 

The first statement was said to me after she asked me a question but knew i was about to get started up and she wanted to stop me. This happens a lot because she can’t handle my truth and the way I see things and she doesn’t like when I remind her of my childhood. Yes she did the very best she could but she fails to realize I did my very best as well and that’s what I continue to do, my best without having a nervous breakdown and ending up being admitted into a hospital. 

“No I’m sorry I asked. Nope, I don’t want to hear what you have to say. I know whatever you’re about to say is going to be stupid.” 

These statements were said when I explained how I don’t agree with taking drugs. As if I’m going to pop a pill and it’s going to motivate me to want to live in this world. As if it’s going to make me a entirely different person. It’s going to make me look at life so much better and I’m going to be so happy and nothing will ever bother me or worry me again. 

“So when are you going to fix yourself?” 

“When are you going to get help?” 

This statement here I didn’t even understand. I guess life and living is about money. If I was working no matter how much I make, no matter how I feel, it would make people look at me as a better person. 

“It’s not that you’re unimportant, it’s that you don’t stay at a job for very long.” 

I’ve worked many jobs, longest time was eleven months. Every job I worked extremely hard, gave it my all. Mostly retail jobs but also some working with food. The most I ever got paid an hour was $9.50. Still living at home at the time I had to help pay bills. So it was impossible for me to save anything. I didn’t see how I would ever get enough money to get my own car or my own place to stay. I remember my mom told me that I wouldn’t be able to make it on my own or afford it. I only got praised when I was doing what I was told or she was in a loving, caring mood. 

Growing up life for me became more difficult every day. 

She hates when I say, “Well you wanted to have kids.” Or “I didn’t ask to be born.” 

I think it’s wrong for people to become parents and think that them doing what they think is the best they could do is good enough and after 18 years old sometimes sooner, that now it’s the child who has to figure out life from there. Being told “I didn’t have anyone to tell me how to do things or explain it to me. I had to figure it out on my own.” 

Wow, it’s just wrong. At some point the chain has to be broken. I love my mom so much but she should not have had me. I should not be here. 

I believe when I was born, both my parents were depressed and it got worst. My entire life I have been trying to fix myself. I’ve been trying to fit in. I’ve been trying to live as others do. My entire life I have not wanted to be here. 

I apologize for being a disappointment and not trying hard enough. Not being able to be someone who they can brag about. 

It’s not that I’m lazy I just can’t handle all the stress in the world. Stress of working and stress at home it is just too much for me. It’s not that I want someone to support me it’s just I’m already working overtime tending to my mind, body and soul. The sad part is I believe I’m failing at that as well. 

Two Way Mirror 

Do you have family or friends close to you that are dealing with some kind of illness different or the same as yours and they have a hard time treating you in the way they would want to be treated. They may compare things in a way as if saying you’re not going through as much as them or how they are dealing with the same thing but it’s so different. 

They are not able to find the words for you that you need to hear. Sometimes they even end up making you feel worse. 

When you go to someone to open up about your feelings and that person looks at you and only sees them self and turns it around to talk about themselves. 

Some people feel if they have had to suffer and figure out on their own then you should do the same. They might say, “I didn’t have any help.” 

Myself, I try my best to uplift someone who comes to me. They felt comfortable enough or maybe I was the only person for them to talk to and even if I can relate, I listen and I remind them of positive things despite how I feel. Helping someone else makes me feel better as a person. Makes me feel I am living in purpose. 

When they are only looking at themselves, I’m looking through seeing much more. 

What do you see? 

Don’t be selfish, help motivate someone and encourage them. People who you love remind them why they are needed, why you love them. If they are lost help try to figure out what direction they need to go. All you have to do is listen and pay attention. 

God has kept me here for a reason. I just want others to see what I see. 

Bless whom is reading this. 

I’m Tired of Explaining

I just want others to remember what I’m going through. Other people don’t get questioned, if others say “I’m tired, hurting somewhere, I’m sick.” People think to themselves, “Oh must be the (fill in the blank.)

But let someone ask me what’s wrong, how do I feel? I answer, “I’m tired, this or that is hurting, I feel sick.” They respond, “Why? What did you do?”

All I want is understanding, just remember I have fibromyalgia, remember it causes me to be in pain and a long list of other bullshit that can’t be explained.

Please come up with better responses because I don’t know why, nor do I know what I did to deserve this pain. All I know is what I feel is as real as you and me. Well most of you, a lot of you all are fake. Trust me I don’t want to feel this way. My entire life all I’ve known is pain in every form.

Family think they know me, and I know secretly they think I’m lazy, spoiled, anti-social, and whatever else.

Educate yourselves and search the word/term Fibromyalgia.
Do not tell me that you know someone who has it, because the illness is different from person to person.

You need to get to know me.
And I won’t die anytime soon, I will deal with this crap for the rest of my life. I have no idea if it’s going to get worst as I get older. The changes are happening every year.

#May12BlogBomb

imageimage#May12BlogBomb

Today is Fibromyalgia Awareness Day, and I wonder how many people other than the ones you have it knows about this day.

It’s not a day that people around me know or remember if I’ve told them. I have no T-shirt to walk around in, have no one wearing one for me. Even though my life is in Gods hands, if a doctor was to put a time on my life, everyone would care then. The fact that fibromyalgia is nothing you can just die from, so they say. It’s just a normal thing now for me to be in pain. What am I doing today? I’m just trying to rest.

The pain becomes like second nature, it’s apart of your life, a living, breathing thing that is draining all of your joy and happiness. You have to find a balance and figure out how you can be happy with pain. That sounds crazy but it’s true. You can’t allow it to get you down. imageimage

Every day is awareness day for me but it’s sure great to have this day today to showcase and really let people show there support. Thanks to all who wear purple for fibromyalgia today and every day for the ones you care and love.

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