We are WildFlowers

Posts tagged ‘Chronic Pain’

Invisible illness

Hello WildFlowers,

When explaining an invisible illness it can be difficult to put it in terms that can clearly be understood. Many may say they understand but they truly have no idea.

Unless you live it, you don’t get it.

Even people who live it don’t fully understand each other because each illness affects everyone differently.

Treatments that help some may not help others.

When you live with someone who is suffering you see a up close and personal view of the struggles and you neither educate yourself and be supportive or get frustrated and make the person feel even worse. It’s a difficult life to live especially when you’re still young and people look at you and don’t see sick, they see you as being healthy.

If you’re not dying or on a boat load of medication/prescription drugs they don’t believe anything’s wrong with you. When you are trying to conserve your energy and you’ve changed your life to work for you, they think you’re lazy. Think you’ve given up or not trying hard enough to get better.

People tend to not except my truth, they think it’s bullshit and I’m full of excuses.

People will never see me on the outside as I feel on the inside. They will never believe me until it’s too late.

Advertisements

Confession Sunday

Hello WildFlowers

It’s Sunday and I know I should not be worried about tomorrow but I am a bit. Part of me had a plan of calling or going up there to the job and do what I have to do to get it. The other “parts” of me Ms. Anxiety and Ms. Depression along with Queen Fibro, they have caused me to question everything. Friday day I got muscle spasms after using the bathroom. The muscle spasms lasted the rest of the day and night. I thought going to sleep, it would help relax my body, but that didn’t help at all.

Queen Fibro, she’s whispering in my ear making me question if I can really do this. Along with Ms. Anxiety questioning everything that could go wrong. How will I explain all the years I’ve been out of work. Ms. Depression is telling me to just keep working at doing my writing, crocheting or knitting.

I fear reaching out. I told myself I will wait to see if I get a phone call Monday. Hopeful that since I’ve been a assistant manager before despite being out of work for years, I will get a call for an interview.

I regret not printing out my resume but honestly, I don’t really know how much I want this. I’m so conflicted, I need money, I should have money, I fear failing, I fear being fired, I be leaving another job. I’ve done it so much in my past that what will make it different now. I’m older and in more pain now so it’s even harder to want to do it.

I want a career. I don’t want to get stuck at some job. Unlike most people I know I won’t me able to work a job and still focus on trying to build a career. All my focus will go to just trying to do that one job, which isn’t even worth it. It will put a little something in my pocket and keep people off my back about not working. It would hopefully take my guilt away.

The thing is I feel I’m still not doing it for myself despite wanting some money. Money has never been my driving force to anything.

I’m so messed up. I have to stop thinking about this now before I go into a panic attack.

Have a wonderful restful day.

Awareness Day

For people with fibromyalgia; awareness is every day but on May 12th it’s a day for others to show their support, and for people living with this condition to proudly be noticed and acknowledged.

What are things about fibromyalgia do you want to bring awareness to today?

One important thing I want others to know for awareness is even when I’m lying or sitting, doing nothing, I am hurting or aching somewhere or all over. It’s exhausting and at times you may get a break and feel pretty good but it doesn’t last long.

Living with an invisible illness is difficult because no one wants to believe you. They see you as this beautiful person because you dress nice, hair done, maybe makeup, and have a smile. They don’t see that inside you feel like you are on fire, breaking into pieces, falling apart, screaming for help, feeling shooting pain etc.

At times I feel as if talking about it gives it power and that I should not claim it into my life, but my body reminds me that I can’t lie to myself. It’s apart of me and I don’t have control over it. Yes I’m a fighter but lately most days I don’t want to fight anymore I just want to be still and try not to feel. It’s laughable thinking I can’t feel, I feel everything.

When you speak about how you feel, they hear excuses. Some think you’re just complaining and lazy. Many keep their pain to themselves.

One of the hardest questions to answer is How are you? The easiest answer is I’m ok.

Edge of the Cliff

Hi, WildFlowers

Hope you all are feeling better than me today. Today I feel so sad, crying and I’m tired. I’m tired and I haven’t even done anything. I don’t even feel like trying to explain what I’m feeling in my body right now. All day long. It’s been a tough few months. Day after day. When the new day starts I’m woke, when the day is moving along I am still, in bed trying to get sleep. By night fall I’m wide awoke again most of the time. There are times that I stay up and try to keep myself busy but with the proper rest, I feel sick.

I feel like nothing I eat or drink agrees with me. To be honest I really don’t want to eat anymore. I try to go as long as I can and not eat. I’m tried of drinking and going to the bathroom. I guess I’m just tried of what is called my life.

One of the most frustrating things are, when you’ve told your family and friends you have fibromyalgia, you have told them all the symptoms even printed them out for them to see and read. Constantly talking about it and explaining. Then when you don’t feel well and they ask what’s wrong, you tell them what you’re feeling and they ask you why are you feeling that way or what did you do. Oh how crazy it is you feel that way etc…

In that moment I feel as if no one cares and of course no one understands. The crap just happens and I don’t know why. It’s like they don’t care to keep that information in their head of What fibromyalgia does to someone. They have no clue.

No one wants to hear about how I feel but then they tell me about their aches and pains as if their pain is more relevant than mine. Don’t forget about the age. People older feel they have a right to feel the way they do and wonder what’s my reason or how, why, would be aching and joints popping, I’m too young to be feeling that way etc…

Extra Weight 

I don’t know if I’m the only one who has put on extra pounds since the symptoms of fibromyalgia kicked in. Over the past years I’ve tried, done my best to keep a workout routine and I always end up finding reasons to stop, other than the pain. I get really bored and of course not having someone to workout with, but not having someone with the same energy, attitude, and of course someone that I really like. 

To other people I may not look any different and I’ve never been a skinny or slim person but I see and feel the difference. It was not just the number on the scale that bothered me. Recently my knees have been bothering me to the point I sometimes feel they will give out on me. It started with my left, and sometimes it’s my right knee. The ache or pain catches me off guard and I have to catch myself as if my leg is giving out. My breathing has gotten heavier and I give out of breath easier. If that wasn’t enough. One morning I wake up and I see my stomach, I notice streach marks on my stomach! I have not had any babies so I should not have streach marks on my stomach. I knew I had gained weight but not to that point. At this point I’m telling myself the same thing I’ve always told myself, you have to do something about this. Having depression and anxiety both make it difficult to find motivation to do anything. Clothes have gotten tighter, everything is uncomfortable and I refuse to go up a size. I will get back to where I was and hopefully go down a size. 

Okay I’m rambling on, I’ll get to the point of this post. I came across this video on YouTube and the guy doing the video was a little comical which caught my attention, but also the fact it seemed easy enough. I told myself I would try it. 

When I woke this morning feeling like doing nothing. Throat seemed swollen and sore. I’m trying not to gag. I had my cup of coffee then endured brushing my teeth without gagging up a lung. Afterwards, I don’t know what came over me. I made the choice in my head that I was going to try this workout. So I did. 

Ok everyone I had the slowest moment in history, dumbest mistake. I get started with the workout. I open the clock app on my phone and set timer for 30 seconds but I do not look at the other columns and hit the start button and I begin to walk as fast as I can back and forth. I’m thinking to myself this is the longest 30 seconds ever, it shouldn’t be taking this long. I keep going and going. Finally the alarm sounds and I look down and I see why it took so long. It was set to 15 minutes and 30 seconds. I couldn’t believe I had did this to myself. My mind could not register that I needed to stop because it was wrong. I had a second or two when I knew something wasn’t right but my mind could not figure out why. That makes me sad and I feel like I’m losing the function to comprehend but on the positive side of things, I got a nice workout. I finished up the right way. I was to do the quick workout  four times but since I had added that 15 minutes to it, I figured I would say I had done enough for now. 


https://youtu.be/Zsr3LDkbM0M (here’s the link to the video) 

Am I Here For Your Amusement? 

  

I’ve been feeling like I just want to be left alone.

One day I was having a conversation with my niece and she was speaking about how she doesn’t want nor need a boyfriend right now she’s focused on college and having a career. I’m so proud of her, doing what I couldn’t and doing what I should’ve done. 
     It got me thinking and I’m like I never took time to be selfish and just think about myself. I was always concerned about others. Everything I did in my life was for everyone else. It was to make them happy and to keep them off my back. The only thing I did for me was abuse myself and no one cared. No one ever stopped and asked me what was wrong, how do I feel, what’s on your mind, how can I help you, what you need for me to do. Everyone was always so selfish. One time when someone called me selfish I was taken back because I’m like I’m selfish because I want to spend time with you, I’m selfish because I want to talk to you. That made me question myself yet again, like I’m this horrible person. 

     Now I just want to be selfish. I want to think about me. I’ve lived my life encouraging others and never getting that encouragement back in return. Just that means I have to work that much harder to succeed. I don’t have any cheerleaders and it’s not easy trying to accomplish goals when you’re battling depression, anxiety and chronic pain everyday. I spend most of the time telling myself I can’t instead of just doing what I need to do. 

        When I decided I wanted to become a writer, I was still unsure. I knew I was a writer, it was in my heart but I knew it wasn’t good enough for the ones around me. I was still trying to live my life for others. Year after year I would always tell myself I’m not good enough, I need to stop, I need to get a good paying job to be able to support myself and forget about writing. Every time I tried I failed. I would always end up with paper and a pen in my hand and it was calling out to me. I was fighting against the wrong things. 

      The past few years life has changed me drastically. I feel I don’t fit in so when I’m around others I put on this smile, try to have the right mood. I don’t want to frown or say the wrong things. I don’t want to have to explain what’s wrong with me. I don’t what to get stared at like I’m different, I already get enough stares as it is. I just want to spend my time with the people who matter the most to me, and who it will make a difference too. People who will speak of me the right way when I’m gone, people who really know all the different sides to me. The good, the bad, the ugly. I make just enough time for those people, and the rest of the time I need for myself. 

    I’ve always been a homebody. I went from not wanting to be alone to wanting to be alone. I went from feeling lonely to embracing it. 

      I just want people to care enough to ask that one simple question… How’s your book coming along?” I want to feel proud to be a writer, I want to be confident enough to say I’m a author. I want to feel that people take me seriously and not as a joke.

       I will continue to wear my smile for those who can’t handle my frown. 

Judgemental

Woke up early this morning with some concerns on my mind.

Do you feel as if we judge one another by the levels of our pain, when it comes to fibromyalgia?

Yes, we are all in pain. Yet all of our pain is different and some may be the same, it’s still pain. Some people with chronic pain move more than others. Some may have more good days than others. Still, they know the pain.
There are people who work through the pain better than others. Some that feel, Well if I’m going to hurt I might as well push myself.

Don’t dislike or always hate someone because of there happiness, or goals they are achieving despite their chronic pain. And yes I agree that I’ve had my moments where I truly believe some people clearly don’t know the pain we feel and they are writing books and saying that if can be “fixed.” And do I dare say “cured” even. Yes I have seen these words from people. That’s when you know they have no idea the pain we feel and deal with every second of our life. But I respect the people who are pushing trying to fight fibromyalgia and fight to enjoy their lives.

What is true to one, may not be true to you but it’s still a truth to someone.

Even our own family and friends compare their pain to ours. Or they want to go back and forth with you on how they feel just as bad as you or they know the pain. They have no clue…

The pain I feel, if they felt it; I’m sure they’d die. Especially the head pain alone would take them out. At times I feel weak but when I see how others react to minor things like a “cold” that reminds me just how strong I really am.

Ok I must confess, when the people I love come to me telling me about this and that hurts. I want to say things like, “why should I care about your pain, if you don’t care about mine?” But I can’t be like that even though at times I’m so frustrated that I do say, “that’s how I be feeling. That’s exactly what I try to explain to you what’s going on with my body.”

I guess it’s difficult for others to notice because I carry this pain so well, I’m used to hiding it and I stand strong. Only one or two people see me at my weakest.

Let’s not hate on each other because our views are different. Let’s empower one another to encourage the hope to keep going and to never give up.

Tag Cloud