Hope you all are feeling better than me today. Today I feel so sad, crying and I’m tired. I’m tired and I haven’t even done anything. I don’t even feel like trying to explain what I’m feeling in my body right now. All day long. It’s been a tough few months. Day after day. When the new day starts I’m woke, when the day is moving along I am still, in bed trying to get sleep. By night fall I’m wide awoke again most of the time. There are times that I stay up and try to keep myself busy but with the proper rest, I feel sick.
I feel like nothing I eat or drink agrees with me. To be honest I really don’t want to eat anymore. I try to go as long as I can and not eat. I’m tried of drinking and going to the bathroom. I guess I’m just tried of what is called my life.
One of the most frustrating things are, when you’ve told your family and friends you have fibromyalgia, you have told them all the symptoms even printed them out for them to see and read. Constantly talking about it and explaining. Then when you don’t feel well and they ask what’s wrong, you tell them what you’re feeling and they ask you why are you feeling that way or what did you do. Oh how crazy it is you feel that way etc…
In that moment I feel as if no one cares and of course no one understands. The crap just happens and I don’t know why. It’s like they don’t care to keep that information in their head of What fibromyalgia does to someone. They have no clue.
No one wants to hear about how I feel but then they tell me about their aches and pains as if their pain is more relevant than mine. Don’t forget about the age. People older feel they have a right to feel the way they do and wonder what’s my reason or how, why, would be aching and joints popping, I’m too young to be feeling that way etc…
April 15, 2014
I’m popping Advil like M & M’s and I can’t even tell if its working. But it’s the best I’m willing to do, I’m on no medication.
Forty-three degrees and I’m very cold. Today was rainy [showers all day.] My finger joints and only my left knee feels swollen and are very achy. Of course my legs are aching and back aches. Still feeling gassy and nothing I do is helping.
All I want to do is sleep and I keep getting headaches [which is nothing new.] Headaches seem to be apart of my everyday all days now.
“The FM-Weather Connection
In an internet survey of 2,596 fibromyalgia sufferers conducted by the National Fibromyalgia Association (NFA), weather changes ranked second as a perceived aggravating factor for fibromyalgia symptoms with an increase in pain or stiffness. However, research studies on the fibromyalgia/weather connection are limited, leaving frustrated doctors and patients searching for solutions.”- http://www.fmaware.org/site/News2c0cd.html
Even in spring, the weather is still giving pain.
What in the world will Summer bring? I wonder.
These are the fibromyalgia symptoms that have been worst for me this year so far and doesn’t seem to be getting better anytime soon.:
chest pain unrelated to the heart
shortness of breath
irritable bladder/interstitial cystitis
vulvodynia (vulvar pain)
difficulty focusing eyes
the feeling of swollen extremities
dry/burning eyes and mouth
I’m ready for April to be done because the spring fever is got me down.
March 13, 2014
Another cold day, with spots of warmth here and there, but overall just cold. A warm day here and then it’s gone.
With being cold today, along with that came my monthly friend [period] so I’m cold and body is aching and cramps are on extra.
Even though despite that I got up and got dressed and went shopping for groceries, went better than most times. We all with fibromyalgia know how it can be somewhat stressful and with having brain fog. My husband grabbed the list [always a good thing] in case I forget it. After coming out from the store and in the car I had to open a powerade I got because my breathing was becoming heavy and I hadn’t had anything to drink or eat all day.
Last week I was having severe headaches and then became breathing really heavy, I had almost forgot I had high blood pressure, I hadn’t even thought about it a good while. I have been slacking off lately, so I’m back trying to get back on the right path. Slowly but not stopping.
I came freezing and I don’t know if I’m the only one dealing with high energy bill because of running the heat. I’ve tried to get by just using the heating pad and stuff but when my arms and legs become too cold, I get this dull, weak like feeling in them and it aches sometimes burns. Wearing a lot of clothes can be so uncomfortable, I would rather just be warm.
I know that once it is warm I’m going to wish it was cool [maybe] I hope I get some kind of relief and more energy from it warming up and I will be able to keep motivation of exercising.
I am just thankful to not be getting any worst.
I just accept that cold, warm, spring, summer, fall, winter, it doesn’t matter my fibromyalgia pain will always be there. But I don’t always have to allow it to keep me in one place or keep me down.
KEEP FATIH, LOVE AND HOPE ALWAYS