When explaining an invisible illness it can be difficult to put it in terms that can clearly be understood. Many may say they understand but they truly have no idea.
Unless you live it, you don’t get it.
Even people who live it don’t fully understand each other because each illness affects everyone differently.
Treatments that help some may not help others.
When you live with someone who is suffering you see a up close and personal view of the struggles and you neither educate yourself and be supportive or get frustrated and make the person feel even worse. It’s a difficult life to live especially when you’re still young and people look at you and don’t see sick, they see you as being healthy.
If you’re not dying or on a boat load of medication/prescription drugs they don’t believe anything’s wrong with you. When you are trying to conserve your energy and you’ve changed your life to work for you, they think you’re lazy. Think you’ve given up or not trying hard enough to get better.
People tend to not except my truth, they think it’s bullshit and I’m full of excuses.
People will never see me on the outside as I feel on the inside. They will never believe me until it’s too late.
I was going to check the mailbox, I open the door and as I stood in front of the screen door the small amount of natural sunlight hit me. I hadn’t even stepped foot on the porch yet and I felt I was being electric ⚡️ shocked. It hurt so sharp across my forehead, around my eyes. This feeling was different, I hadn’t felt this pain before. Going outside with the sun shining has been difficult but I was able to just squint my eyes and bare it. Eventually my eyes adjust. Today though I was caused pain that I couldn’t endure and squinting my eyes didn’t matter. Matter of fact I didn’t even squint my eyes, I closed them and had to turn away from the door.
It affected me. I quickly told my husband and said, “I need my sunglasses, I need my sunglasses.”
I have no idea if it was a migraine issue or not because no other light had caused that pain all day, it wasn’t until I was looking out the glass of the door when I felt the pain.
I put on my sunglasses and walked outside. The sunglasses helped right away and the pain eased off. It was difficult for me to get pass the pain I had felt though. When I feel a new pain it always makes me sad because I don’t want to add to the list, I want to eliminate it.
Another day living with my invisible illness.