Hope you all are feeling better than me today. Today I feel so sad, crying and I’m tired. I’m tired and I haven’t even done anything. I don’t even feel like trying to explain what I’m feeling in my body right now. All day long. It’s been a tough few months. Day after day. When the new day starts I’m woke, when the day is moving along I am still, in bed trying to get sleep. By night fall I’m wide awoke again most of the time. There are times that I stay up and try to keep myself busy but with the proper rest, I feel sick.
I feel like nothing I eat or drink agrees with me. To be honest I really don’t want to eat anymore. I try to go as long as I can and not eat. I’m tried of drinking and going to the bathroom. I guess I’m just tried of what is called my life.
One of the most frustrating things are, when you’ve told your family and friends you have fibromyalgia, you have told them all the symptoms even printed them out for them to see and read. Constantly talking about it and explaining. Then when you don’t feel well and they ask what’s wrong, you tell them what you’re feeling and they ask you why are you feeling that way or what did you do. Oh how crazy it is you feel that way etc…
In that moment I feel as if no one cares and of course no one understands. The crap just happens and I don’t know why. It’s like they don’t care to keep that information in their head of What fibromyalgia does to someone. They have no clue.
No one wants to hear about how I feel but then they tell me about their aches and pains as if their pain is more relevant than mine. Don’t forget about the age. People older feel they have a right to feel the way they do and wonder what’s my reason or how, why, would be aching and joints popping, I’m too young to be feeling that way etc…
Today I read a message that was sent to me and it like many others I’ve received. It’s full of hope about being “cured” about making life better, having a life without pain. The funny thing is I’m not in pain right now as I’m writing this but like any other day that could change at any moment. I wanted to share the message with you all and share my response. I hope I do not offend the person who sent me the message but I dislike people who send me messages of wanting to talk to me about something that will fix me, as if I’m broken. Well they stated that it’s something that will give me my life back. The one problem with that is unlike others, this is the only life I’ve known. It hasn’t been any better or any worst. It just is what it is. Everyone with or without a chronic illness will have good and bad days, they will also want to vent or complain a bit. My life is what it is and even with chronic pain I don’t know what I would be doing differently. My pain isn’t what has stopped me, many other factors in my life have kept me from succeeding. I was on a downward spiral on an never ending roller-coaster and fibromyalgia forced me to stop and examine my life and realize I had many habits that needed to stop. My pain is a wake up call, a reminder of I’m still not the person I should be.
If mentally I’m the same person and I spend money to buy any and everything that could make me feel better, for how long will it work? Won’t I become depended on it? What happens if I can’t get it anymore?
I may not always be smiling and hopeful for my down days don’t last as long as they used too. Mentally I’m much stronger now than I’ve ever been. My body is forcing me to make changes but I want to be able to find a way that doesn’t have me buying some special kind of product regardless if it’s “healthy” or “natural” I have a long way to go. Financially I want to start with the basics such as the food I eat, getting enough sleep and being as active as I can. Until I’m able to get those things under control I’m not wasting money. I need free solutions for my life. I know many will argue that it’s worth it but I don’t agree. I want to just be able to buy fresh vegetables or grow my own and eat without worrying that it’s going to make me sick. I want to be able to have a drug-free life. I made it to age 33 I think I can make it many more years. (Just how I feel about my life)
Message Sent: “HI Melissa, How are you going? I kind of feel like that is a silly question as I just read your current blog (from the 10th). I wanted to connect as I have a large circle of people around me with Fibromyalgia and we have found something that has given them their lives back. Sounds crazy and impossible, I know! They all think the same things 😂 If you would like to connect, and learn more, please feel free to get in contact with me. I would love to skype/face time and find out more about you. Take care.”
My response: Hi, financially I can not buy anything to try in hopes it will magically make me feel better. The difference from me and others is, other people had a life they loved before fibromyalgia and have a point that they wish to get back to. Since I was young I’ve lived with anxiety and depression and the fibromyalgia came later, which I feel I maybe always had. I don’t have a life to get back. I just have the life that I live. I’m still here and still going, I don’t look at my pain as a life stopper, I feel it’s been a life changer for the better. It sucks and it is very painful at times but I don’t like being told that there is some fix all product. If there is why be so secret about it. Give me something to post and let everyone know about this wonderful thing that will give them there lives back. Thank you take care.
Always remember that Jesus himself went through pain. He had been where you are and been through more pain than you could endure, ten times over. You Your never alone in this journey. I know it’s not easy and you want to give up but you must keep going. As long as you are waken up or maybe you never went to sleep, as long as you still have breath inside you; you must keep going. Your pain is not the end, your pain is an eye opener.
Like Paul some of us are reminded every day that we are in constant pain and some of us can find the positive outlook on it, while others see it has a curse/touture.
Mentally you must be strong, even when your body is weak, fore when the body is weak so can it trigger negative thoughts that cause you to fall right into all the discomforts in life.
You must Find Your Comfort in the pain. Don’t just live with it and accept it, you must continue to find the root of it all. Is your pain as is the thorn in Paul? Are you accepting it to better yourself? Or have you accepted that your life was meant to be full of pain?
Better yourself, your life, the smallest to the largest of things that need working on. This is the time to face truths that you’ve been lying to yourself about for years. What is God trying to change about you? Or in you/your life?
Find Your Comfort… if it’s in your pajamas, then you proudly wear them and don’t feel guilty or worry about what others think. You have to think of yourself now. You are the one enduring the pain, not them. True friends and family that truly love you, will be right by your side and won’t judge you. Anyone who looks down on you, is not for you. Keep people around that allow you to feel peace, happiness and tranquility.
Most importantly have people around you that motivate you to be a better you. Remember that you won’t see a difference unless you try. The pain may be there always, so if you’re going to hurt anyways, you might as well do what you enjoy. At least then you have a reason to why you’re in pain. Find Your Comfort.
March 6, 2014
Stop Feeling Guilty
If you need rest, then rest. If you can’t right at the moment, that is okay, as long as you promise to come back and get it done. Don’t just say you can’t and quit, you can just not right now. If you can only do a little bit today, or only go one place, or only wash the clothes today. At least you got one thing done and out the way. Stop feeling guilty because you feel you owe more, or you’re not doing enough. Do you feel you’re doing enough in Gods eyes? Don’t give up and no matter how long it takes you, God will love you and be proud of you if no one else is.
Stop feeling guilty for your choices that you made to help yourself, you are no good too anyone broken and hurt. Family and friends should understand and I know most day they do but still question you. Keep yourself focused on making yourself better.
I always feel guilty for not working and watching my husband go off to work everyday, and at times I feel if I were to bring in income we would be a lot better. But that’s the thing, in my eyes we are ok and I’m basic needs are met, I have no need in being greedy. Also before we got married my husband said he was alright with me not working. It was mostly for me to focus on my writing as an author, but I was tried. From my teen and early twenties I worked and quit jobs left and right. I would start off strong and before I knew it depression and anxiety would take over me. It was a cycle that I had no control over no matter how hard I tried. I knew what my heart wanted, I wanted to be a wife, mother and author, that was my dream. Just not what plans were for me. I am a wife, wrote a little bit and self published but not up to professional standards. No kids and I feel guilty that I’m wasting my life, I’ve been trying to figure out my mission. I do t know if I will ever go back to work, but I know that money does not drive me, it doesn’t keep me or inspire me. I am, I want, I need to stop feeling guilty like I don’t bring anything to the table, because I may not bring money but I bring a lot more other things and I’m the only thing I’m guilty of is trying to become a better person in and out.
“Trust God and His Word to reveal to you when your guilt is false and your thinking is wrong.”
“Trust in Him What makes you feel guilty? What does God’s Word say about the situation? Stop believing your feelings that condemn you, and put your trust in His Word that convicts.”