365 Days of Fibromyalgia

Posts tagged ‘spokesperson’

Beyond Social Media

February 12, 2014

Beyond Social Media

Speak Up

I have read about the celebrities with fibromyalgia and most all of them stopped working then was able to start back. That’s wonderful, we all if lucky are able to love our life but it hurts. And I get the pressure of being a spokesperson but come on, know one pressured people to be spokesperson to other illnesses. And it’s not about being a spokesperson more than its sad that we have to settle for what it is. Like it’s just life everything works differently for everyone. I’m getting to the point that awareness is pointless. Sure if I was a big star on tv or movie actor, a singer, musician or something Maybe I too wouldn’t speak about it, and make it so much of my life. I get that they are more than that, we all are more than Fibro. None of us asked for this shit. I know if I was well known I would proudly be the spokesperson.
How about we just do like they did back in the day, not talk about what we had. Hide our sickness and then slowly everyone may see us become sick. I’m tired of being a joke, tired of people not thinking its a real thing. Tired of people being able to fake this, like if they only knew that NO ONE CAN FAKE THIS! IF YOU HAVE IT YOU HAVE IT. AND THEY FOR DAM SURE WOULDN’T WANT TO HAVE IT.
Oh how I wish I could, I would put my face to it and try to make more out of awareness; than just talking about it.
I am frustrated a bit and upset, bit this is just my opinion and how I feel. How can I be ashamed of something that I’ve had for years of my life, how can I not add that to my accomplishments. I have survived everyday of my life with pain.

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