365 Days of Fibromyalgia

Posts tagged ‘@Walk2FightFibro’

Hours of Cramps/Spasms 

I had a wonderful day today. I exercised and got in all my “required” water. I felt proud of myself. But this happiness didn’t last, I decided I wanted to do something grown-up. (Bad idea) 

I felt the spasm start or cramp, I’m not sure which or if both are happening. All I know is that it’s painful. To move it hurt and when I’m able to get myself up, with every step I take the spasm gets worst. 

It’s been a few hours now I think, it feels it’s been a long time. The pain is in my stomach, vargina, butt areas. On top of that I have had, which when the gas comes it hurts when the air tries to release. 

Also with all the water I’ve drunk today, I’m having to go to the bathroom a lot, which sucks because it is very uncomfortable sitting on the toilet with cramps and spasms. The worst is when I left it’s over but it starts up again (off and on.) 

The pain is unexplainable… 

   

Challenge My Fibro Body : week 7

Challenge My Fibro Body : week 7

July 6, 2015
Spent my day with my husband and there were a lot of laughs, so the day went well.

July 7, 2015
“The tragedy of life is not death. It’s what you let die inside of you while you’re living. Is your youthful spirit still alive? Are you still fascinated by…anything and everything? May you be blessed to start each day fully alive in body, mind, and soul.”

When I saw this and read it( it really touched me. I feel like I start each day off “half-dead” because of all this pain.

I rode somewhere, and then back home to relax. I spent my day crocheting and doing the normal things I do.

July 8, 2015
Late last night my back became sore, then felt as if it was going to spasm luckily it didn’t but the pain increased. This morning it’s still sore and I feel like crap. It is week seven I been trying to get back on track by challenging my body, and right now my body is winning this battle. I have simply lost all motivation, but at least mentally I’m still somewhat hopeful and positive. My body just doesn’t want to play nice, and mentally I can’t seem to fight through to push myself to just workout. With other things on my mind and other things that I want to do, or need to do, have to get done and do. I get overwhelmed and I just hope that the moving around I do do is good enough and I know sometimes good enough, isn’t enough. I hope I can turn this back around soon. This is the true challenge of having chronic pain, you never know what your body is going to do and you have to fight it every day.

July 9, 2015
6:23am and I’m just now about to fall asleep.

“Throughout your whole life you have been bombarded with things that are wrong with you. Turn your attention around, and find out what’s right about you and what’s right about the present moment.”

July 10, 2015
“No matter how great your challenge, God is greater. May you be blessed to have a radical change in your life at the point of your need.”

“Change your life today. Don’t gamble on the future, act now, without delay.”

Even though we may not be able to take the pain away, we may be able to change the amount of pain we’re in. (hopefully) it can be tough but we have to start now, because if we don’t the future may be worst.

#FightThePain #Walk2FightFibro #ChallengeMyFibroBody 

I want to day that I feel really hopeful today and I’m moving around with ease. And to all my readers who read my blog know that I’m honest and open with what I post. Honestly I was going to keep trying at this exercise journey, but I realize today that it’s a challenge for my body everyday I wake up, if I even been to sleep. I am not lazy and I do a lot around the house for the ones I love and that is exercise for me. I’m not getting rest like I should and exercising isn’t exciting for me, I guess because I’m doing it alone. It’s just days like today I’m good but I just don’t feel the need to go outside. I’m spending my day crocheting and that makes me happy, helps me relax. I feel stressed about working out, I feel stressed about what food I should eat, stressed about I’m not doing enough. I just want to sit back and reflect on this day and put my mind at ease. To the ones who are going strong and need to workout everyday, keep up the hard work. Just for me right now, I’m going to take one day at a time and stop worrying about my weight. I started this mostly because I want to get extra weight off, and I tried to change my mind set and tell myself that I was doing it just because it made me feel better. Truthfully I think I was doing it to show and prove to others. I really don’t know anymore how much I just do for me, and not to prove others wrong. I’m tired and if me don’t love me for who I am, then I don’t need them in my life. I’m done with complaining about how I look because this is me and I’m not going to give up. I’m going to continue on a healthy path, I’m just not going to let it get me overwhelmed. I just want to live my life. (Whatever Life That Is)

Challenge My Fibro Body

Challenge My Fibro Body : week 5 
June 22, 2015 
Starting yesterday my ankle began hurting, why? Well that’s the mystery question. Only answer I have is because of fibromyalgia. My problem is not really having what I need. I have a ace-bandage but I can’t seem to wrap it so that it gives me support where I need it. Even after wrapping it up, when I try and walk it still hurts if I put my weight on it the wrong way. This morning I still can’t walk straight, the wrong move hurts very badly. Going down the stairs, was not fun. The aching is also in my leg. And by all means I not trying to complain and moan about depressing stuff. But the fact of the matter is that this is my life, every day of my life. When I wake up, till I fall asleep (if I fall asleep) and starts all over again the next day. Today is one of those days where I feel, “if I’m moving around then I doing ok.” 
“At least I’m up moving around the house, and not just sitting or laying.” 
June 23, 2015 
Okay this is turning out to be more of a challenge than I expected. And the challenge is, I get bored of exercise really quick. I can do it just to do it, do when I feel like it. But to know I need to do it every day and that if I don’t, nothing with my body will change. It’s like I really don’t want to do it. Then when I do my body has a difference of opinion. I don’t have anyone to exercise with me and I think that holds me back a little. (I’m lonely) bit I’m also picker when it comes to spending time with people. I just wish I could get myself together. In my mind I do a lot and I feel I could be a “beast” at this exercise thing and “go hard” but I just can’t seem to get on that level. I sit and think back on how I used to look and how I used to feel and I don’t know how to get back there. Truth is I can’t, that’s in the past and I want to be better than before. 
June 24, 2015 
I stepped on the scale this morning and it was down a pound again, and that motivated me to exercise today. 
•Leslie Sansone-Walk Away The Pounds 3Mile 
I feel strong and great today, workout was awesome, I sweated a lot. This me today is the me I love, hope I stay around more often. 
June 25, 2015 
•1 mile walk 
I walked around just in time, it began to thunder, got the walk in before a storm started. 
June 26, 2015 
Was going to workout but ended up standing up for too long doing other things and by the time I started to really exercise, my legs were extreme tired. So guess today turned into somewhat of a rest day. 
June 27, 2015 
•Leslie Sansone-Walk Away The Pounds 1 Mile 
June 28, 2015 
•Rest

Challenge My Fibro Body : week 2

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June 1, 2015
•2.01 Miles Walk start time little after 8am (28mins)

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June 2, 2015
Today I am torn between resting and pushing myself along. Last night as I tried to sleep my right leg bothered me and still as I woke this morning it aches badly, from my thigh all the way to my foot. Cramping in my foot and sore ankles. I’m very tired and emotional this morning, crying thinking about how tough things are for me and no one around me doesn’t think I have it hard. Everyone thinks I’m just being lazy and spoiled. I want to get this weight off of me so bad, in hopes that I will feel a lot better but I don’t want to end up becoming so depressed and stressed for it to happen. Truthfully I think that’s been the only times in my life I slimed down, is because I was very depressed. Barely eating if any, and sleeping a lot. That’s what I ended up doing and I don’t want to let that happen but days like this makes me feel like that may be the only way. While writing this just now I have began to have pain in my face/jaw. I guess I will rest today, going to do my best to find a peaceful/happy place in my mind to relax. (Wishful Thinking) Everyone thinks they know and can relate somehow but they have no idea. If you don’t have it, you will never understand it. All my life I thought I knew pain but the pain I’ve had from fibromyalgia for the last seven years, has been hell on earth and along with the other situations in life, marriage, family, friends, hardships all around. All I can think about is that I’m still here, what am I going to do. It’s one of those days…

June 3, 2015
Again today I’m off my routine that i had started because of the weather, and because of my monthly cycle approaching, my energy level is down and body aching everywhere. Today I cramped up, having muscle spasms like in my butt around my groan area. It’s been a long time since I’ve felt that and having aching in my feet. Still I ended going out with my husband because he is under the weather. I kind of felt depressed and earlier in the day I felt frustrated, irritated, and annoyed.

June 4, 2015
Woke up this morning feeling drained and the heels of my feet are so sore and aching. It’s another rainy day and I have stuff to get done, but I so don’t want to go anywhere. I’m sad again today, trying to get my tears out before my husband returns.   I didn’t go anywhere after all. Took almost all day for the pain in my heel to stop. Today was a messed up day but hoping for a better tomorrow.

June 5, 2015
Again this morning I woke with the heel of my foot hurting. I tell you my motivation is all the way down. This is not going the way I wanted, but maybe the way I expected with my fibro body. 

June 6, 2015
I have woke up this morning with good intentions. Trying not to let things get me down, because those things are going to be with me very morning as I am on this path of exercising. I still didn’t do any exercising but was up moving and doing today.

June 7, 2015
Today I wake up to get ready to go to my niece high school graduation, I’m do happy, excited and proud of her, glad I get to go. But I have to be honest, I’m nervous also though because I’ve been cramping a lot these past days. I hope and pray my fibromyalgia let’s be get through the day without embarrassing me. 12pm-2pm is how long the ceremony is and I’m wearing heels, going down town, I hope I make it.
Of course I have a bowel movement this morning and it makes me cramp up do bad in my ass/stomach. This has been happening a lot lately. It hurts like hell, but I have to force myself through this pain today. My day ended on a good note but as soon as I got home I cramped up again after going to the bathroom. I don’t know why it keeps happening. Overall though I’m good.

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Challenge My Fibro Body : beginning of week 2

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Today I am torn between resting and pushing myself along. Last night as I tried to sleep my right leg bothered me and still as I woke this morning it aches badly, from my thigh all the way to my foot. Cramping in my foot and sore ankles. I’m very tired and emotional this morning, crying thinking about how tough things are for me and no one around me doesn’t think I have it hard. Everyone thinks I’m just being lazy and spoiled. I want to get this weight off of me so bad, in hopes that I will feel a lot better but I don’t want to end up becoming so depressed and stressed for it to happen. Truthfully I think that’s been the only times in my life I slimed down, is because I was very depressed. Barely eating if any, and sleeping a lot. That’s what I ended up doing and I don’t want to let that happen but days like this makes me feel like that may be the only way. While writing this just now I have began to have pain in my face/jaw. I guess I will rest today, going to do my best to find a peaceful/happy place in my mind to relax. (Wishful Thinking) Everyone thinks they know and can relate somehow but they have no idea. If you don’t have it, you will never understand it. All my life I thought I knew pain but the pain I’ve had from fibromyalgia for the last seven years, has been hell on earth and along with the other situations in life, marriage, family, friends, hardships all around. All I can think about is that I’m still here, what am I going to do. It’s one of those days…
It was also raining last night and it started back now this morning, could it be the weather also that’s helping fibromyalgia toutrue me today.

Invisible Film

Invisible Film 

Check out this t-shirt and tank, it could have so many different meanings and maybe nothing to others, but to me it means showing my pain on the outside. My illness being invisible to the world is difficult, and I support this movement of the @Invisible_Film because it’s what we all need; it’s time for the invisible to be seen. 

It makes me feel seen and this T-shirt will be a conversation starter and easier way to talk to others about what’s going on with you. 
It tells others that what I’m going through, dealing with is visible; it’s real. 

I hope this will help awareness by allowing a platform that many will watch, who doesn’t like watching a film, as they watch they will see and learn. I hope it opens their eyes and I hope it brings more support and awareness to my cause which is fibromyalgia.  

“Supporting the production of a documentary challenging the way society and western medicine view chronic pain and chronic illness.”

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invisible Film t-shirt

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invisible tank top

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