If only we could remove what was hurting us, some would be nothing but a much of body parts.
Wanting to remove my left leg and thigh from my body like a doll. Aching right where the thigh connects to the hip. Aching and stiffness in leg, down to my foot that keeps having a sharp pain, cramping and aching. I forgot about aching in my knee.
As I sit here trying to explain, it’s difficult thinking about all the different aches I’m feeling right now. It makes me sad to focus on it, even though I’m feeling it and can’t stop thinking about it because I can’t help but feel it. It has not gotten in easier trying to explain to someone how I feel.
How do you sum it up into a few words?
I go through moods of wanting to tell people how I’m feeling but feel as if I’m complaining and rather not share.
(how I felt last year in March 2018)
I’m ok but I’m not good. Yesterday, I had muscle spasms/cramps in my body. This was the first time I felt this in my chest (like that) It hurt as I walked it tighten. Also felt it in my back, down my legs as I walked. It took my breath away and at that moment I felt so alone. No one knows what I’m feeling, even if they do know, no one understands, there’s nothing anyone can do. No one really knows what to say to me. It was so bad yesterday that my husband walked with me to the mailbox. As I took my time, holding onto his hand. I thought to myself, omg, I cant end up like this. I’m exhausted, it’s so much random shit. Like last night my eyes just began to burn and watered up so bad it was like I was crying. No one will never truly understand me. I have been locked up in a prison of my mind forever, now my body is torturing me. My life has been hell on earth. Some days are difficult.
I am still here and still fighting. Dealing with mostly the stress of life than dealing with pain. Even though I know any stress can cause pain in my body. All of the weather changes of being warm one day then back cold, has bothered me. Also my sleep patterns have been off. Not sleeping well is enough on it’s on but feeling sharp pain off and on in a leg or foot or anywhere, randomly, makes it difficult to fall asleep. I’m feeling sharp pain in my left foot right now as I type this. By the way it’s 2:35 am and I have no idea when I will fall asleep.
When explaining an invisible illness it can be difficult to put it in terms that can clearly be understood. Many may say they understand but they truly have no idea.
Unless you live it, you don’t get it.
Even people who live it don’t fully understand each other because each illness affects everyone differently.
Treatments that help some may not help others.
When you live with someone who is suffering you see a up close and personal view of the struggles and you neither educate yourself and be supportive or get frustrated and make the person feel even worse. It’s a difficult life to live especially when you’re still young and people look at you and don’t see sick, they see you as being healthy.
If you’re not dying or on a boat load of medication/prescription drugs they don’t believe anything’s wrong with you. When you are trying to conserve your energy and you’ve changed your life to work for you, they think you’re lazy. Think you’ve given up or not trying hard enough to get better.
People tend to not except my truth, they think it’s bullshit and I’m full of excuses.
People will never see me on the outside as I feel on the inside. They will never believe me until it’s too late.
I woke up Monday morning with my right thumb hurting. I’m right handed and I use my hands a lot. The one thing I’ve been doing mostly that brought on this pain in my thumb is knitting.
This pain was new to me. I found myself trying to figure out if it was Carpal tunnel syndrome or early signs of Rheumatoid arthritis. Could it just be inflammation?
All my issues have been with my legs down to my feet. That alone was having me worry. I’ve had some issues with my hands before in the past but it has been in my fingers. To have it move to my thumb now was just, I don’t know, something else to add to the list.
The first time I had an terrible experience with my hands was with carrying a basket of clothes. I was at a apartment complex, no car, so I carried it from the apartment to the laundry building which wasn’t that far but wasn’t right around the corner either. I got inside the building and placed the basket down. Once I put it down I realize my fingers are stuck, curved in the position they were in when holding onto the basket. I start to panic a bit but luckily my husband was with me at the time. As soon as he walked in I was like, “I can’t unbend my fingers, my hands are stuck. Help me get them unstuck.”
My husband grabbed my hands one by one and kind of massaged them and they started to relax and I could move them again. I was so thankful that he was with me that day because I have no idea how long I would’ve been like that if I was alone, because I would’ve been freaking completely out and unable to relax.
That moment scared me and I knew my life was going to be full of these surprises forever now. The older I get I feel the less control I have of it.
It’s Sunday and I know I should not be worried about tomorrow but I am a bit. Part of me had a plan of calling or going up there to the job and do what I have to do to get it. The other “parts” of me Ms. Anxiety and Ms. Depression along with Queen Fibro, they have caused me to question everything. Friday day I got muscle spasms after using the bathroom. The muscle spasms lasted the rest of the day and night. I thought going to sleep, it would help relax my body, but that didn’t help at all.
Queen Fibro, she’s whispering in my ear making me question if I can really do this. Along with Ms. Anxiety questioning everything that could go wrong. How will I explain all the years I’ve been out of work. Ms. Depression is telling me to just keep working at doing my writing, crocheting or knitting.
I fear reaching out. I told myself I will wait to see if I get a phone call Monday. Hopeful that since I’ve been a assistant manager before despite being out of work for years, I will get a call for an interview.
I regret not printing out my resume but honestly, I don’t really know how much I want this. I’m so conflicted, I need money, I should have money, I fear failing, I fear being fired, I be leaving another job. I’ve done it so much in my past that what will make it different now. I’m older and in more pain now so it’s even harder to want to do it.
I want a career. I don’t want to get stuck at some job. Unlike most people I know I won’t me able to work a job and still focus on trying to build a career. All my focus will go to just trying to do that one job, which isn’t even worth it. It will put a little something in my pocket and keep people off my back about not working. It would hopefully take my guilt away.
The thing is I feel I’m still not doing it for myself despite wanting some money. Money has never been my driving force to anything.
I’m so messed up. I have to stop thinking about this now before I go into a panic attack.
Have a wonderful restful day.
I stepped out of my comfort zone this week. A store I went into were hiring for stocking and I got an application. It’s a small dollar tree store and it really needed help. My mom and I asked if you can just get hired just to stock and they said yes. I’m hoping that this will be the first time, well I take that back the second time I can get hired not to be a cashier. I have most of my experience in retail, also was a assistant manager so I qualify for the job. The only thing is, I haven’t worked in years. I know I don’t want to handle the stress of being a cashier but being on the floor and organizing things is the part I always enjoyed.
Plus dealing with the symptoms of fibromyalgia a lot has changed with myself. Also my anxiety had gotten worse, so it’s a big step for me to have taken the application back yesterday. I drove myself, which is a big deal now. I have to wait until Monday and I will see what happens.
At least I’m making an attempt.
I just want to do something that won’t be too much stress on me and can give me a income to contribute, so I won’t feel like a waste of space or at least put a little money in my pocket.
For people with fibromyalgia; awareness is every day but on May 12th it’s a day for others to show their support, and for people living with this condition to proudly be noticed and acknowledged.
What are things about fibromyalgia do you want to bring awareness to today?
One important thing I want others to know for awareness is even when I’m lying or sitting, doing nothing, I am hurting or aching somewhere or all over. It’s exhausting and at times you may get a break and feel pretty good but it doesn’t last long.
Living with an invisible illness is difficult because no one wants to believe you. They see you as this beautiful person because you dress nice, hair done, maybe makeup, and have a smile. They don’t see that inside you feel like you are on fire, breaking into pieces, falling apart, screaming for help, feeling shooting pain etc.
At times I feel as if talking about it gives it power and that I should not claim it into my life, but my body reminds me that I can’t lie to myself. It’s apart of me and I don’t have control over it. Yes I’m a fighter but lately most days I don’t want to fight anymore I just want to be still and try not to feel. It’s laughable thinking I can’t feel, I feel everything.
When you speak about how you feel, they hear excuses. Some think you’re just complaining and lazy. Many keep their pain to themselves.
One of the hardest questions to answer is How are you? The easiest answer is I’m ok.