How long did it take you to figure out what to change in your life to help make you feel better?
I am still on the journey of trying to figure out what to eat, what not to eat. How does my body react to things. I’m lost and I can’t keep track. Every time I think I know, I don’t really have it. That alone is exhausting.
Being in so much discomfort and pain. You don’t want to take away everything you love. I want to be able to have those things that just make me happy, but I don’t know if those things are keeping me from being stuck in this never ending cycle.
Lately I’ve been so stressed which is not good. Random things keep happening as they always do but I’m never ready or looking forward to. For example: I’m sitting up in bed legs crisscrossed “indian style” I unfold them and notice my right foot is going numb, like it’s fallen asleep it’s tingling. Within seconds of me noticing that the same feeling moves up my entire leg and thigh. I’m freaking out because it feels weird, uncomfortable and I don’t know what’s about to happen next. What if I lose all feeing or can’t walk. I took off whatever clothing I had on just to feel free and I laid back and tried to relax. The feeling goes away at some point but I’ve never had that feeling go up my leg like that and especially with me just sitting on the bed.
I’m like I have to be mindful of so much that I do and that is one reason why I choose not to go to every family event of go everywhere in general because I’m just concerned of what or how my body may react to be being out.
Right now I have a toe that had been bothering me since yesterday and it feel the bone of the toe or joint hurts.
I’m so exhausted trying to live a life that I feel is trying to kill me. I can’t seem to get much of anything that is important to me done. My hands keep aching, I have to take breaks for that along with the fact I’m not sleeping well so I have to sleep when my body allows me to. Well I should say mind and body allows me to. Mostly by He time I fall asleep and wake up the day is almost over and I’m trying to get in as much as I can before it’s time for me to try and fall asleep again like a “normal” person.
Oh!!! I almost forgot another reason I haven’t been sleeping is because my skin as been itching so bad. I’m feeling things on me, feeing little pricks and stings. I feel like I’m losing my mind. Then seem like every time I get to sleeping really good, I have to get up to pee. 🤦♀️ trying to find balance of cold and hot is another struggle.
Of course I could go on and on…. I just don’t know if I will ever have this all figured out.
All I know is keeping negativity away and saying NO when I can’t and don’t want to do something right go somewhere. Making myself laugh more and putting time and energy into myself.
I haven’t posted anything in a long time. I haven’t even wrote much at all. It’s been difficult trying to document how I feel let alone try to be inspiring for someone else.
I’m going my 12th year of living life with fibromyalgia. I don’t know how I feel, I’m kind of numb to it all. So many different things are weighing me down and nowadays I just want to be left alone.
On a more positive note, I’ve been knitting and crocheting more and my skill level has really improved. It’s become a thing that keeps my mind focused. I knit way more than I crochet but nothing is better than being able to get some cool new yarn and create something.
Today is also Mother’s Day. I’m not a mother but I’m here alone enjoying time to myself. I kind of hate I missed out on today because it could’ve been fun, I decided I would celebrate with my mom tomorrow maybe but today I decided to choose me for change and take time to relax and be with my thoughts. It feels good to not have anxiety kicking my butt for a change. Even though I know it’s still there waiting to make me uncomfortable.
I hope you all who are moms are enjoying this day. Happy Mother’s Day and Fibromyalgia Awareness Day.
(how I felt last year in March 2018)
I’m ok but I’m not good. Yesterday, I had muscle spasms/cramps in my body. This was the first time I felt this in my chest (like that) It hurt as I walked it tighten. Also felt it in my back, down my legs as I walked. It took my breath away and at that moment I felt so alone. No one knows what I’m feeling, even if they do know, no one understands, there’s nothing anyone can do. No one really knows what to say to me. It was so bad yesterday that my husband walked with me to the mailbox. As I took my time, holding onto his hand. I thought to myself, omg, I cant end up like this. I’m exhausted, it’s so much random shit. Like last night my eyes just began to burn and watered up so bad it was like I was crying. No one will never truly understand me. I have been locked up in a prison of my mind forever, now my body is torturing me. My life has been hell on earth. Some days are difficult.
I am still here and still fighting. Dealing with mostly the stress of life than dealing with pain. Even though I know any stress can cause pain in my body. All of the weather changes of being warm one day then back cold, has bothered me. Also my sleep patterns have been off. Not sleeping well is enough on it’s on but feeling sharp pain off and on in a leg or foot or anywhere, randomly, makes it difficult to fall asleep. I’m feeling sharp pain in my left foot right now as I type this. By the way it’s 2:35 am and I have no idea when I will fall asleep.
When explaining an invisible illness it can be difficult to put it in terms that can clearly be understood. Many may say they understand but they truly have no idea.
Unless you live it, you don’t get it.
Even people who live it don’t fully understand each other because each illness affects everyone differently.
Treatments that help some may not help others.
When you live with someone who is suffering you see a up close and personal view of the struggles and you neither educate yourself and be supportive or get frustrated and make the person feel even worse. It’s a difficult life to live especially when you’re still young and people look at you and don’t see sick, they see you as being healthy.
If you’re not dying or on a boat load of medication/prescription drugs they don’t believe anything’s wrong with you. When you are trying to conserve your energy and you’ve changed your life to work for you, they think you’re lazy. Think you’ve given up or not trying hard enough to get better.
People tend to not except my truth, they think it’s bullshit and I’m full of excuses.
People will never see me on the outside as I feel on the inside. They will never believe me until it’s too late.
I woke up Monday morning with my right thumb hurting. I’m right handed and I use my hands a lot. The one thing I’ve been doing mostly that brought on this pain in my thumb is knitting.
This pain was new to me. I found myself trying to figure out if it was Carpal tunnel syndrome or early signs of Rheumatoid arthritis. Could it just be inflammation?
All my issues have been with my legs down to my feet. That alone was having me worry. I’ve had some issues with my hands before in the past but it has been in my fingers. To have it move to my thumb now was just, I don’t know, something else to add to the list.
The first time I had an terrible experience with my hands was with carrying a basket of clothes. I was at a apartment complex, no car, so I carried it from the apartment to the laundry building which wasn’t that far but wasn’t right around the corner either. I got inside the building and placed the basket down. Once I put it down I realize my fingers are stuck, curved in the position they were in when holding onto the basket. I start to panic a bit but luckily my husband was with me at the time. As soon as he walked in I was like, “I can’t unbend my fingers, my hands are stuck. Help me get them unstuck.”
My husband grabbed my hands one by one and kind of massaged them and they started to relax and I could move them again. I was so thankful that he was with me that day because I have no idea how long I would’ve been like that if I was alone, because I would’ve been freaking completely out and unable to relax.
That moment scared me and I knew my life was going to be full of these surprises forever now. The older I get I feel the less control I have of it.
It’s Sunday and I know I should not be worried about tomorrow but I am a bit. Part of me had a plan of calling or going up there to the job and do what I have to do to get it. The other “parts” of me Ms. Anxiety and Ms. Depression along with Queen Fibro, they have caused me to question everything. Friday day I got muscle spasms after using the bathroom. The muscle spasms lasted the rest of the day and night. I thought going to sleep, it would help relax my body, but that didn’t help at all.
Queen Fibro, she’s whispering in my ear making me question if I can really do this. Along with Ms. Anxiety questioning everything that could go wrong. How will I explain all the years I’ve been out of work. Ms. Depression is telling me to just keep working at doing my writing, crocheting or knitting.
I fear reaching out. I told myself I will wait to see if I get a phone call Monday. Hopeful that since I’ve been a assistant manager before despite being out of work for years, I will get a call for an interview.
I regret not printing out my resume but honestly, I don’t really know how much I want this. I’m so conflicted, I need money, I should have money, I fear failing, I fear being fired, I be leaving another job. I’ve done it so much in my past that what will make it different now. I’m older and in more pain now so it’s even harder to want to do it.
I want a career. I don’t want to get stuck at some job. Unlike most people I know I won’t me able to work a job and still focus on trying to build a career. All my focus will go to just trying to do that one job, which isn’t even worth it. It will put a little something in my pocket and keep people off my back about not working. It would hopefully take my guilt away.
The thing is I feel I’m still not doing it for myself despite wanting some money. Money has never been my driving force to anything.
I’m so messed up. I have to stop thinking about this now before I go into a panic attack.
Have a wonderful restful day.
I stepped out of my comfort zone this week. A store I went into were hiring for stocking and I got an application. It’s a small dollar tree store and it really needed help. My mom and I asked if you can just get hired just to stock and they said yes. I’m hoping that this will be the first time, well I take that back the second time I can get hired not to be a cashier. I have most of my experience in retail, also was a assistant manager so I qualify for the job. The only thing is, I haven’t worked in years. I know I don’t want to handle the stress of being a cashier but being on the floor and organizing things is the part I always enjoyed.
Plus dealing with the symptoms of fibromyalgia a lot has changed with myself. Also my anxiety had gotten worse, so it’s a big step for me to have taken the application back yesterday. I drove myself, which is a big deal now. I have to wait until Monday and I will see what happens.
At least I’m making an attempt.
I just want to do something that won’t be too much stress on me and can give me a income to contribute, so I won’t feel like a waste of space or at least put a little money in my pocket.